Today's IV Treatment at a glance:
Start Rocephin...Red spreads.
Stop Rocephin...Red disappears.
Start Rocephin again...arm burns, legs jerk.
Stop Rocephin...
None of us had the guts to start it again.
Altered Today: Belief in ART testing results, Confirmation of an allergy, Discontinuing Rocephin protocol.
« Day 222: Undefined | Main | Day 224: After The Rain »
07/12/2011
Comments
You can follow this conversation by subscribing to the comment feed for this post.
The comments to this entry are closed.
ALTER EVERYTHING
What do you get when you combine a creative, Type A personality with Chronic Lyme Disease? A choice: A) Be swallowed whole or B) Reinvent yourself--daily. Alter Everything is my quest to respect "A" and embrace "B" as much as possible. Here, I recount my daily adventures in pursuit of an altered life.
–Kathy Tagudin
Recent Posts
- When No Means Yes
- An Invocation for Beginnings
- What's Right with the World
- Rest In Peace
- The Definition of Better
- Feeling Gutted
- Through the Looking-Glass
- Day 449: The Best Way To Give Yourself Methyl B-12 Injections
- Day 428: Thanks....For Everything
- The Toe In The Day: Mark Nepo's Take On Pain & Chronic Illness
Search
Categories
- Animals
- Asking for Help
- Authors
- Being Courageous
- Communication
- Cooking
- Crafts
- Crazy Creatives
- Creativity
- Current Affairs
- Decorating
- Environment Issues
- Etsy
- Faith
- Family
- Fibromyalgia
- Film
- Finding Myself
- Food and Drink
- For Sale
- Friendships
- Funny
- Furniture
- Games
- Getting Things Done
- Gifts
- Gratitude
- GU
- Hope and Healing
- How To
- Idealist
- Insomnia
- Inspiration
- Journals
- Just for Fun
- Love
- Makeovers
- Music
- My Art
- My Photos
- Packaging
- Parasites
- Pregnancy
- Random Thoughts
- Recycling
- Religion
- Remedies/Relief
- Requests
- Science
- Sharing Yourself
- Shopping
- Soap Box
- Sports
- Television
- Tips for Living
- Travel
- Web/Tech
- Weblogs
- Weight Loss
Copyright © 2013 Tagudin, LLC. All Rights Reserved.
I'm confused! Did you just start Rocephin again today, or is this an old picture?
Posted by: Alyson | 07/12/2011 at 06:20 PM
That ART testing is looking better and better! I was thinking though that if I had the kids tested, I wouldn't have anything to send them to 'test' against...like meds. I could send their vitamins, I guess. Thoughts?
Posted by: Melissa | 07/12/2011 at 11:14 PM
Alyson, I usually do Rocephin twice a week. This was my first time back after my last reaction and this is what happened (The last reaction happened after I left. These two incidents happened in plain view...indicating a heightened response each time they reactivated the drip). Needless to say, no more Rocephin.
Mel, you don't need to have the kids on anything. She will make recommendations based on the results.
Posted by: Alter Everything | 07/12/2011 at 11:23 PM
Good decision to d/c the Rocephin. Your body is telling you something. Do you know whether they have something to replace it with?
Posted by: Jrsn1234 | 07/13/2011 at 05:19 PM
Thanks Kath!
Posted by: Melissa | 07/14/2011 at 02:14 PM
I agree, Judy. Right now they are just going to keep me on my oral medication, but if I go back on IV's, Vancomycin or Invanz could be an option. We'll see...
Posted by: Alter Everything | 07/15/2011 at 09:21 AM