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annemarie nienstedt

Thank you for all of that information. I will print it out and bring it to my doctor. I was also wondering..doesn't Lyme cause actual damage to the body? Such as arthritis, or other physical symptoms? I know with Fibro even though you may have pain in your joints, you don't have actual physical symptoms like cartilage loss. I am curious about that.

Alter Everything

Hey AnnMarie--That's a great question. Yes, Lyme can cause a lot of physical symptoms...seizures, RA, Osteoporosis, Heart Problems, Dysautonomia, swelling, brain damage, lesions, paralysis, speech trouble, migraines, light/sound sensitivity, chemical sensitivity, etc. Trouble is many people do not get these symptoms until it's too late (depends on complicating factors, what stage you are in, etc).

For a list of lyme stages, go here... http://arthritis.webmd.com/tc/lyme-disease-symptoms

FYI: I don't know how long I have had it. I do know I was bit by something last fall when I got sick and I am already showing lesions in my brain and on some occasions have lost my ability to talk and walk.

As a side note, many Lyme Literate Physicians believe ALS, Parkinsons, Alzheimers, and Multiple Sclerosis are all actually manifestations of late stage (or chronic) Lyme. If they are right (and I honestly believe that they are), it is definitely worth investigating.


Oh my god. Ran across your Blog looking for information, as my girlfriend has fibro. Seeing how she feels some days with just fibromyalgia, my heart goes out to you for having to cope with Lyme in addition.
You have my hopes and prayers.

Take care.

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Alter Everything

Thanks so much for commenting....my Denver moving friend. Just curious? Has your girlfriend been checked for Lyme? If not, you may want to consider it. Many Lyme Literate Medical Doctors believe Lyme is the cause of many Fibromyalgia symptoms. I can't say if that's the case or not, but it's definitely worth investigating (the info on how to best do that is above). She may also benefit from a drug called Low Dose Naltrexone.Thanks for loving and supporting your girlfriend so much. She's lucky to have you. Wishing you hope and healing.

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What do you get when you combine a creative, Type A personality with Chronic Lyme Disease? A choice: A) Be swallowed whole or B) Reinvent yourself--daily. Alter Everything is my quest to respect "A" and embrace "B" as much as possible. Here, I recount my daily adventures in pursuit of an altered life.
Kathy Tagudin
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