« Day 88: All is Well | Main | Day 90: Touched by an Angel »

02/28/2011

Comments

Feed You can follow this conversation by subscribing to the comment feed for this post.

mo

Hi, Just found your blong link on chronic babe. I'll be back to read more soon.
mo

M. Antal

Thanks for these tips on how I can support you! Love you!
M

Kathy Tagudin

You do all of them already, but you're welcome. ;)

Ecaggiano

14. try the yucky medicine :) ok, that's not on the list. And since I was late that day, it negates the self-sacrifice! Damn. I love you... and I'll rip the spine from a book up to prove it xoxox BTW: I'm up for dragging you into the sunshine. When & Where?

Kathy Tagudin

LOL Elaine. No, I think tasting herbs that taste like Feet and turpentine trumps being late. You're safe. And you're a good friend. That's the ironic part of writing this post. The people I most wish would read it, are the ones who won't. Anyway, no matter. I am really getting how important it is to focus on what I have vs. what I am missing. Text me about sunshine. I love you.

Lynda M O

An excellent list of support activities; thanks for taking the time to put it together. I agree that the people that need to read this the most-won’t !~! Sad and True. As a chronic pain patient and a care provider, I am especially interested in these lists from both perspectives.

Joanna

That is such a good list!
I too feel that friends have left as they just don't want to deal with me. A coworker remarked to another that meeting me for lunch was so depressing - no kidding. My life revolves around my illness and trying to find a way to get better, people don't get that.

I also love the part about your husband. I also feel like my guy is my rock and he totally gets it, but I feel bad that I'm not the woman he married.

Kathy Tagudin

I'm sorry to hear that, Joanna. I've had experiences like that too and it's awful. Maybe today's post can give you some ideas? I also get what you are saying about being a wife. In fairness though, we're always changing. You might not be the gal he fell in love with, but that doesn't mean the new one isn't wonderful as well. Just a thought.

Hugs, love, and laughter, Kathy

Kathy Tagudin

OOOOH Lynda...maybe you could put together a list from a caregiver's perspective? I now I drive my husband crazy sometimes. I would love to hear how I could make his job easier. Let me know if you're interested. I could post it as a link.

Mary Kathryn

Hi, thanks for your blog.
I found #10 particularly helpful. I have often pondered putting together
a list such as this on my blog...I feel inspired and perhaps I shall. I do have some friends who complain how hard my lengthy illness has been for them. :( I have several thoughts on that, but basically it boils down to this: they don't know what to do, and if I can be concrete about saying what I need, it may help them and me. Hope you are feeling OK/not-too-shitty/ today. Maybe one of the stories on my blog will give you a laugh or a smile. Hope so.
Best, MK

Kathy Tagudin

Thanks for the comment, MK. I had the same thought myself. When I sat down to write the post, I was initially feeling bitter, but as I got into it I really got "they just don't know...and it's my job to tell them." Love your blog, by the way. I have a special fondness for people who use the phrase "blah, blah, blah." So appropriate for so many things. Having a decent day...the kind where you're tired with just random symptoms here and there. Hope you are too. Stay in touch!

Munteha Shukralla

Thank you for sharing this with us all. I have no idea what it is like to deal with what you are dealing with and I really appreciate you communicating what I/we can do to support you.
Love, Munteha

Kathy Tagudin

Thanks for reading, Munteha. Miss and love you.

The comments to this entry are closed.