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05/04/2012

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Darla Brown

Are you seeing an LLMD? I saw 40 other type of doctors and medical professionals who could not help me. Once I got with my LLMD I started improving slowly but surely. Good luck to you! Be well....

Kathryn

My heart is breaking for you Kat. I want so badly to give you an end date for all of this so that you can at least point to it and tell yourself: I can do this, I can suck it up and deal with it until that day. But I can't, and it's breaking my heart to see you down, frustrated, feeling helpless. None of these are you; you are a positive thinker, a go-getter, laughter-makes-all-the-difference-in-the-world person. I have faith in you Kat. You will not be defeated by this; YOU won't allow it, and neither will your friends (near or far). You're one of my hero Kat; when I think life isn't such a bag of Oreo's, I literally think of you. BIG GIANT RIB-CRUSHING, BREATH STEALING HUG.

Renee

Wow,you are being beat up by the Lyme and by all the medical probing and poking! So sorry things are so bad for you right now. Praying for relief for you....lots of love to soak in.....lots of TLC....

Alter Everything

Thanks Kat and Renee...I know both of you have had more than your share of all of this stuff. No fun and hopefully temporary.

Darla, Thanks so much for responding. I actually do see an LLMD and have made great progress since I started treating with him over a year ago.

When the symptoms get too nutso, he always refers me out to rule out other stuff...which is smart. Sometimes I think I have just reached the end of what he can do for me. Glad to hear you're improving. Hope you continue to do so. With love and gratitude...

Eve

Wow, best blog ever!
I too have spent years reading and trying everything for multiple chemicall sensitivity which has a lot of overlap with your symptoms. I have recovered mostly, but realize I am still delicate and could go back. I still have it, but not to the 'life is a nightmare' degree. I have a FB and website.
The reason I am commenting is because some of us , are going to try the baking soda mollassas cancer cure. You get your ph to 8 for 4 or 5 days and it's supposed to kill the candida or fungus that is causing all of the problems. I wrote about it on my site detoxTheBodyMCS.com .I have a theory that it might work for other chronic illnesses. The cures for cancer, Lyme, ms,MCS, chronic fatigue, fibromyalgia all seem to be the same. I read a lot about this cancer cure and there are people out there who say it worked, and fast. I see you try anything, so you can do the experiment with us if you want, or read about it later to see if it worked. Awesome blog, I am going to post and tweet it. There are so many people going through this type of nightmare, but you never seem them because they are home. I was mostly at home for 2 years.

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ALTER EVERYTHING
What do you get when you combine a creative, Type A personality with Chronic Lyme Disease? A choice: A) Be swallowed whole or B) Reinvent yourself--daily. Alter Everything is my quest to respect "A" and embrace "B" as much as possible. Here, I recount my daily adventures in pursuit of an altered life.
Kathy Tagudin
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